< Back Flagship Surgical Training Programme - Submit your case! Aug 26, 2025 Flagship Surgical Training Programme ERNICA and eUROGEN have jointly launched the Flagship Surgical Training Programme to strengthen expertise in ultra-rare and highly complex congenital surgical care across Europe. The initiative enables centres treating very rare or complex cases to host “Flagship” surgeries, where high-potential junior consultants can join as part of a travelling team. All cases are discussed in the Clinical Patient Management System (CPMS 2.0.), with structured pre- and post-operative panels to ensure shared learning and follow-up. This programme is a unique opportunity to build succession planning, secure continuity of care, and prepare the next generation of rare disease surgeons. Learn more and submit your case: https://www.ern-ernica.eu/flagship-training-programme Previous Next

< Back EURORDIS ERN patient partnership framework development Nov 6, 2023 PATIENT PARTNERSHIP IN THE ERNS The new EURORDIS Patient Partnership Framework describes partnership in the ERNs as a relationship between healthcare professionals and people living with a rare disease, or their carers, which informs decision-making. The key to achieving true, systematic patient partnership within the networks is involving these rare disease community members as equal partners in all ERN domains. Read more: 2023_Eurordis_PatientPartnershipFramework .pdf Download PDF • 1.05MB Previous Next

< Back Daniel Rossi Project Manager ERNICA/EPSA registry d.rossi@erasmusmc.nl / d.rossi@dica.nl

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< Back 2-4 April '25 ERNICA annual meeting Frankfurt, GE Previous Next

< Back 21-24 May '25 26th EUPSA annual congress Dubrovnik, HR Previous Next

< Back 30-31 January '25 ERNICA CDH course Rotterdam, NL Previous Next

< Back 30-3 May '25 Joint INoEA, PAAFIS and Aerodigestive Society meeting Istanbul - TR Previous Next

< Back 14-17 May '25 57th Annual meeting of the European Society of Paediatric Gastroenterology, Hepatology, and Nutrition Helsinki, FI Previous Next

< Back 3-4 October '24 Joint NITE/ERNICA Intestinal Failure Meeting Madrid, ES Previous Next

< Back 3-4 October '24 Joint NITE/ERNICA Intestinal Failure Meeting Madrid, ES Previous Next