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Improving care for rare inherited and congenital gastrointestinal
anomalies

ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies

Information for patients and families

Within our network, we have patient representatives that represent certain patient communities. Besides, we work on several activities for the patient and family community.

Information for clinicians

Within our network, clinicians work towards standards of care, are provided with training opportunities and can make use of our clinical patient management system.

Rare diseases covered by ERNICA

Esophageal Diseases

Intestinal Diseases

Intestinal Failure

Gastroenterological Diseases

Malformations of the diaphragm and Abdominal Wall Defects

Latest News

April 2, 2025 at 10:00:00 AM

ERNICA 9th annual meeting, Frankfurt, Germany

December 11, 2024 at 11:00:00 AM

4th ERICA GA & ERN Research Conference

October 15, 2024 at 10:00:00 AM

Clinician Researcher/(Post)doctoral Fellow Opportunity in Fetal Surgery

Upcoming events

Expert centres in Europe

ERNICA is a network of expert multi-disciplinary professionals from

specialised healthcare providers (HCPs) across Europe (‘ERNICA full members’).

‘Affiliated partner’ hospitals and their multi-disciplinary professionals also form part of the network.

ERNICA includes 52 European Health Care Providers (HCPs) from 21 EU Member States,

involving 39 HCP full members and 13 Affiliated partners.

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