About ERNICA
ERNICA is the European Refence Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies.
ERNICA is a network of expert multi-disciplinary healthcare professionals from specialised healthcare providers across Europe. The network was officially launched in March 2017. ERNICA is coordinated form Erasmus MC, Rotterdam, the Netherlands.
MISSION
ERNICA aims to pool together disease-specific expertise, knowledge and resources on rare inherited and congenital anomalies from across Europe to achieve health goals that may otherwise be unachievable in a single country.
VISION
ERNICA aims to reduce health inequalities across Europe by standardising practices, facilitating research and making high-quality care, information and resources accessible to healthcare providers, patients and their families/carers across Europe, regardless of where they are located.
ERNICA collaborations and networking partners
In pursuing our mission, vision and aims, the ERNICA network works together with other expert rare disease networks. ERNICA is part of the European Rare Disease Research Coordination and Support Action consortium (ERICA), in which all 24 ERNs take part, where we work together in all ERNs on research and innovation. On a European level, ERNICA also takes part in the European Joint Programme on Rare Diseases (EJP RD).
Moreover, ERNICA collaborates with EURORDIS rare diseases Europe. EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.
Additionally, ERNICA has established a collaboration with the European Journal of Pediatric Surgery (EJPS), which is the official organ of 28 European National Associations of Paediatric Surgery and official journal of the EUPSA and of the Union of European Medical Specialists.
ERNICA is funded by the European Union. The content of this website represents the views of the author only and it his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Health and Digital Executive Agency (HaDEA) or any other body of the European Union. The European Commission and the agency do not accept any responsibility for use that may be made of the information it contains.
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