Where is care provided? 

Care for intestinal failure is provided in specialized university hospitals under the national health system.

 

​Psychological & Social Support

Support for patients and parents includes:

• Psychologist

• Social worker

• Psychiatrist or psychiatric nurse

​

Home Parenteral Nutrition (HPN)

• Fully funded by the national health service

​

Costs and reimbursement 

Families may be eligible for additional support such as:

• Parental leave compensation

• Childcare support

  • Hospital social workers and government agencies help families apply

​

School and education

A comprehensive support system is available:

• Hospital teacher (school and kindergarten)

• Special education

• Coordination between hospital school and regular school

• Neurology/neuropsychology support for assessing learning needs

​

Patient organisations​

There are unofficial Facebook and WhatsApp groups available for patients. Please check with your hospital to see if they can provide you with the relevant details to join these groups.