Guidelines
For some rare or complex conditions, there are no clinical guidelines or consensus statements available at present. For some diseases, these are available but some may require review and revision.
ERNICA seeks to endorse, develop or revise existing clinical guidelines and consensus documents to ensure clinical recommendations are made available to clinicians, patients and their families based on research of the highest quality.

To safeguard the scientific integrity of our guidelines and consensus statements, ERNICA partners with the specialized professional organization Qualicura in their development. Within Qualicura, we closely collaborate with Willemijn, a methodologist, to ensure thoroughness and accuracy.
For inquiries about the methodology employed in guideline development, please reach out to: willemijnirvine@qualicura.nl
For questions regarding ERNICA guideline development in general, feel free to contact: r.vansteekelenburg@erasmusmc.nl

Willemijn Irvine
Qualicura Methodologist


Romee van Steekelenburg
ERNICA projectmanager
Esophageal diseases
Esophageal Atrasia and tracheoesophageal Fistula
Pediatric achalasia
An ERNICA consensus statement is currently being developed in collaboration with ESPGHAN. A version tailored specifically for patients and their families will be developed thereafter.
Abdominal wall defects
Gastroschisis
Publication of the guideline on the management of Gastroschisis
Please find here the full version of this guideline.
Omphalocele
An ERNICA consensus statement is currently being developed. A version tailored specifically for patients and their families will be developed thereafter.
Intestinal diseases
Hirschsprung's disease
Guideline for the management of rectosigmoid Hirschsprung's disease.
This guideline has also been translated into Ukrainian
ERNICA summary of the guideline for clinicians has been produced in three languages.
A version tailored specifically for patients and their families is currently in development.
Necrotising Enterocolitis
ERNICA Guideline on Surgical Aspects of Necrotizing Enterocolitis in Premature Neonates
Published summary can be read here.