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Guidelines

For some rare or complex conditions, there are no clinical guidelines or consensus statements available at present. For some diseases, these are available but some may require review and revision.

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ERNICA seeks to endorse, develop or revise existing clinical guidelines and consensus documents to ensure clinical recommendations are made available to clinicians, patients and their families based on research of the highest quality. 

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To safeguard the scientific integrity of our guidelines and consensus statements, ERNICA partners with the specialized professional organization Qualicura in their development. Within Qualicura, we closely collaborate with Willemijn, a methodologist, to ensure thoroughness and accuracy.

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For inquiries about the methodology employed in guideline development, please reach out to: willemijnirvine@qualicura.nl

For questions regarding ERNICA guideline development in general, feel free to contact: i.denuijl@erasmusmc.nl

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Willemijn Irvine 

Qualicura Methodologist 

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Iris den Uijl 

ERNICA projectmanager

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Esophageal diseases

Esophageal Atrasia and tracheoesophageal Fistula

Consensus statement on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Diagnostics, Preoperative, Operative, and Postoperative Management

Consensus statement on the on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Follow-up and Framework

Consensus statement on on the perioperative, surgical and long-term management of patients with long-gap esophageal atresia.

Pediatric achalasia

An ERNICA consensus statement is currently being developed in collaboration with ESPGHAN. A version tailored specifically for patients and their families will be developed thereafter.

Abdominal wall defects

Gastroschisis

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Publication of the guideline on the management of Gastroschisis

 

Please find here the full version of this guideline.

Omphalocele

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An ERNICA consensus statement is currently being developed. A version tailored specifically for patients and their families will be developed thereafter. 

Intestinal diseases

Hirschsprung's disease
 

Guideline for the management of rectosigmoid Hirschsprung's disease.


 

 

 

 


ERNICA summary of the guideline for clinicians has been produced in three languages.

 

 

 

A version tailored specifically for patients and their families is currently in development.

Total Colonic Aganglionosis

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ERNICA Clinical Consensus Statements on Total Colonic and Intestinal Aganglionosis

Necrotising Enterocolitis

 

An ERNICA guideline is currently being developed. A version tailored specifically for patients and their families will be developed thereafter. 

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