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APEHDia, the main French charity dealing with Congenital Diaphragmatic Hernia (CDH), works very closely with the French scientific and medical community, provides emotional and financial support to families with facing a CDH diagnosis and encourages and funds research.

Achalasie-Selbsthilfe e.V

Achalasie-Selbsthilfe e.V. is a non-profit organisation whose purpose is the advancement of science and research in achalasia by organising educational and networking events for medical professionals and people affected with the disease.

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The Italian Association of Hirschsprung's Disease A.Mor.Hi was established by parents, professionals and volunteers to help parents deal with and resolve problems related to Hirschsprung's disease, support scientific research and raise awareness.

CDH Sverige (Sweden)

CDH Sverige is a national non-profit organisation that aims at improving life conditions for children, youngsters and adults living with Congenital Diaphragmatic Hernia (CDH) as well as their relatives, by, for instance, spreading knowledge and a building a CDH community in Sweden.


CDH UK is a modern charity made up of experts providing complimentary care to patients and their families in the form of information, emotional and practical support and by conducting, encouraging and funding research.

EOS network -Eosinophilic diseases

EOS Network is a British charity whose mission is to ensure that every person with an Eosinophilic Gastrointestinal Disease receives a prompt, accurate diagnosis, the right treatment for them, and support to live with their condition.

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Esophageal Atrasia Global Support Group

EAT is an international federation of family support groups which focus on sharing experiences, disseminating information and raising awareness of the rare congenital condition of Esophageal Atresia (EA).


Guts UK is the only UK charity that covers the digestive system from top to tail: the gut, liver and pancreas. Their mission is to provide expert information, raise public awareness and fund life-changing and life-saving research.


NEC U.K. is the first charity in the UK exclusively for the condition Necrotising Enterocolitis (NEC).It is parent led and primarily offers support to families affected by the condition at any stage of their journey.

Platform CHD

PlatformCHD is an association that helps people in the Netherlands and Belgium who are affected by Congenital Diaphragmatic Hernia (CDH) by organising national and international conferences and fundraising events, acting as a resource and promoting research on the broader aspects of CDH.

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SoMA e.V. is the German patient organisation that helps with questions about treatment, follow-up and psychosocial aspects of Anorectal Malformation (ARM), Hirschsprung's Disease (HD) and Cloacal Exstrophy.

Supporting partners

Two supporting partners represents people with intestinal failure within the ERNICA network

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