New ERNICA Publications Spotlight Quality Improvement and Collaborative Research

Improving care for patients with rare inherited and congenital gastrointestinal anomalies demands strong international collaboration, something ERNICA is proud to champion.

• Fostering continuous quality improvement in a European rare disease network

  In a new paper co‑authored with colleagues from 10 European countries, we introduce the ERNICA Quality Cycle: a practical, iterative framework for continuous quality improvement across our network.📄 Read the full paper

  
  

• Collaborative Efforts in Pediatric Surgery: Lessons from European Randomized Controlled Trials

  A second article reflects on two ERNICA‑endorsed trials in pediatric surgery, detailing the challenges of running RCTs for rare congenital anomalies and offering recommendations to inform future studies.📄 Read the full article

Together, these publications underscore ERNICA’s commitment to shared learning, evidence‑based practice, and better outcomes for children across Europe.