Dec 30, 2025
Registrations are now OPEN for the European Conference on Rare Diseases and Orphan Products (ECRD) 2026.
ERNICA is a proud associate partner of ECRD 2026. This edition of ECRD will engage patients, policymakers, clinicians, researchers and industry in a community-led effort to co-develop an EU Action Plan (or Strategic Framework) for Rare Diseases — a collective exercise in “planning for a Plan.”
Together, ECRD 2026 will lay the foundations for a European Blueprint for Rare Diseases:
🔹 Consolidating existing initiatives
🔹 Identifying gaps and unmet needs
🔹 Defining concrete steps to accelerate progress
This is where shared ambition becomes measurable outcomes — and where the rare disease community shapes what comes next.
👉 Register now to benefit from early-bird fees and secure your place at ECRD 2026: https://www.rare-diseases.eu/register/
