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European Conference on Rare Diseases and Orphan Products (ECRD) 2026.

Dec 30, 2025

Registrations are now OPEN for the European Conference on Rare Diseases and Orphan Products (ECRD) 2026.


ERNICA is a proud associate partner of ECRD 2026. This edition of ECRD will engage patients, policymakers, clinicians, researchers and industry in a community-led effort to co-develop an EU Action Plan (or Strategic Framework) for Rare Diseases — a collective exercise in “planning for a Plan.”


Together, ECRD 2026 will lay the foundations for a European Blueprint for Rare Diseases:


🔹 Consolidating existing initiatives

🔹 Identifying gaps and unmet needs

🔹 Defining concrete steps to accelerate progress


This is where shared ambition becomes measurable outcomes — and where the rare disease community shapes what comes next.


👉 Register now to benefit from early-bird fees and secure your place at ECRD 2026: https://www.rare-diseases.eu/register/


Thanks for submitting!

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