Patient-tailored guidelines
For rare or complex conditions, there are no clinical guidelines or consensus statements available at present. For some diseases, these are available but some may require review and revision.
ERNICA seeks to endorse, develop or existing clinical guidelines and consensus documents to ensure clinical recommendations are made available to clinicians, patients and their families based on research of the highest quality. As part of this dissemination, ERNICA seeks to create tailored versions of guidelines/consensus statements for patients and families.
Esophageal Atrasia and tracheoesophageal Fistula
Consensus statement
Hirschsprung's Disease
guideline
Esophageal Atrasia and tracheoesophageal Fistula
Consensus statements
Consensus statement on the Diagnostics, Preoperative, Operative, Postoperative Management, Follow-up and Framework.
Consensus statement on the Perioperative, Surgical and Long-term Management of patients with Long-gap Esophageal Atrasia
Hirschsprung's Disease
Guideline
ERNICA developed a guideline for the management of rectosigmoid Hirschsprung's disease. A version tailored specifically for patients and their families is currently in development.