Where is care provided? 

Care is provided through the regional health service and specialized hospitals.

 

​Psychological & Social Support

Support for patients and parents includes:

• Social workers in hospitals

• Similar support for parents

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Home Parenteral Nutrition (HPN)

• Covered by national and regional government

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Costs and reimbursement 

• Fully government funded

• No additional applications required

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School and education

• Hospital school available, primarily used by younger children

• Many patients do not require long hospital stays

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Patient organisations​

• A group exists, but is currently not active