Aim of the ERNICA Scientific Committee

To provide overview of ongoing research and promote and facilitate research collaboration between ERNICA members and partners to enhance rare disease research.

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Responsibilities of the ERNICA Scientific Committee

• Creating an overall research strategy 2022-2027

• Tracking research activities using the research survey 

• Actively monitor potential grants (assisted by Research & Development Erasmus MC)

• Stimulate collaboration between member and partner centres

• Facilitate workstream meetings

• Assess if overall support can be provided (e.g. Data Sharing Agreement)