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Traveling abroad with intestinal failure

 

Are you a patient or family member of a child with intestinal failure who is reliant on total parental nutrition (TPN)? Do you avoid traveling abroad in case of not having access to specialist care at times of need? 

 

You're not alone!

The 2019 ERNICA annual meeting featured an insightful presentation by two parents of children with intestinal failure, both of whom are reliant on total parenteral nutrition as a method of feeding. They presented their personal challenges in regards to travelling abroad with their children and voiced their concerns about not having access to specialist, emergency care (if needed) whilst abroad. ERNICA recognises these challenges and has developed an online map tool so that you can easily identify specialist centres across Europe that meet the following criteria:

  1. Centre has a minimum of 10 (paediatric) patients on long-term home TPV and delivers TPV to these patient 

  2. Centre can place central venous lines for TPV children.

Knowledge of this may help you to prepare for a trip abroad. In 2022 the online map was expanded with information on care for adults. By using the filter on the vacation tool, centers providing for children or adults can be selected. 

Access the map tool below

* Centres will be continually added to the map as and when appropriate.

* This tool is for informative purposes only. The purpose is for patients/families/carers to be able to easily identify specialist centres abroad. ERNICA is not responsible for the organisation or provision of care. ERNICA is not an emergency service. ERNICA cannot be contacted to discuss clinical cases outside of the Clinical Patient Management System (CPMS).

 

Templates

A patient's local healthcare provider can make use of the following templates to provide a record of the medical history/any clinical precautions. These can accompany you on your trip abroad in case emergency care is required.

 

The following TPN checklist can also be used when preparing for your trip abroad.

Centres

ASST Papa Giovanni XXIII Hospital

Italy

Children

Kepler University Hospital Linz, Austria

Austria

Children

Radboud University Hospital Nijmegen

Netherlands

Children, Adults

CHRU de Lille

France

Children

Universitätsmedizin Mannheim

Germany

Children

Erasmus Medical Centre Rotterdam

Netherlands

Children

Hospital of Lithuanian University of Health Sciences Kauno Klinikos, Lithuania

Lithuania

Children

University of Helsinki

Finland

Children, Adults

CHU de Marseille - Hopital de la Timone

France

Children

CHU Paris - Hôpital Robert Debré

France

Children

CHU Paris - Hôpital Necker-Enfants Malades

France

Children

UZ Leuven

Belgium

Children, Adults

University Hospital Graz

Austria

Children

AOP Padua

Italy

Children, Adults

Amsterdam University Medical Centre

Netherlands

Children, Adults

Karolinska University Hospital

Sweden

Children, Adults

La Paz University Hospital, Madrid, Spain

Spain

Children

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