< Back ERNICA 8th annual meeting, Wroclaw, Poland Apr 10, 2024 On Wednesday the 10th - Friday 12th of April, 2024, the 8th ERNICA network meeting was hosted by Wroclaw Medical University in Wroclaw, Poland. During the annual meeting, clinicians and patient representatives from across Europe had the opportunity to meet in person. Throughout the three-day event, they connected, shared new initiatives, established collaborations, and exchanged expertise on topics related to rare inherited and congenital anomalies. Thank you to everyone who attended the annual meeting. Your valuable contributions are greatly appreciated! Interested in the programme for the annual meeting? Please take a moment to review and download the provided programme below. ERNICA annual meeting 2024_Final programme .pdf Download PDF • 155KB Previous Next

< Back Cliniques universitaires Saint-Luc Belgium This centre has expertise for ERNICA in: Rare Pancreatic Diseases Previous Next

< Back ERNICA Webinar on Intractable Fecal Incontinence Sep 30, 2026 ERNICA Webinar on Intractable Fecal Incontinence - Wednesday, 30 September, 4-5PM CET. This webinar will provide an overview of fecal incontinence in patients with anorectal malformations and Hirschsprung's disease, highlighting its prevalence, clinical challenges, and available treatment pathways. Participants will also gain valuable insights into surgical approaches through the discussion of a representative case study. Speakers: Dr. Richard J. Wood, Nationwide Children's Hospital, USA Irene Schokker, Erasmuc MC, The Netherlands You can register here . We look forward to seeing you there! Previous Next

< Back Martine Joseph CPMS Helpdesk martine.joseph@aopd.veneto.it

< Back Statement on hospital attack in Kyiv Jul 8, 2024 ERNICA is profoundly saddened by the recent attack on the Okhmatdyt Children’s Hospital in Kyiv. Our heartfelt condolences go out to the families and loved ones of the victims. We stand in solidarity with the dedicated healthcare professionals who strive to deliver medical care to the children of Kyiv during these challenging times. As a network dedicated to improving high-quality specialised care for children, ERNICA firmly believes that hospitals must remain a safe haven and should never be targeted under any circumstances, particularly children's hospitals, which care for the most vulnerable patient population. It is imperative that the international community comes together to ensure that hospitals are universally respected as neutral grounds and that such regrettable attack does not happen ever again anywhere in the world. Previous Next

< Back ASST Papa Giovanni XXIII di Bergamo Italy This centre has expertise for ERNICA in: Congenital Diaphragmatic Hernia Duodenal And Small Bowel Atresia Esophageal Atresia Gastroschisis Intestinal Failure Morbus Hirschsprung Omphalocele Previous Next

Patient-tailored Guidelines For rare or complex conditions, there are no clinical guidelines or consensus statements available at present. For some diseases, these are available but some may require review and revision. ERNICA seeks to endorse, develop or existing clinical guidelines and consensus documents to ensure clinical recommendations are made available to clinicians, patients and their families based on research of the highest quality. As part of this dissemination, ERNICA seeks to create tailored versions of guidelines/consensus statements for patients and families. Esophageal Atrasia and tracheoesophageal Fistula Consensus statement Hirschsprung's Disease guideline Esophageal Atrasia and Tracheoesophageal Fistula Consensus statements Close Consensus statement on the Diagnostics, Preoperative, Operative, Postoperative Management, Follow-up and Framework. Consensus statement on the Perioperative, Surgical and Long-term Management of patients with Long-gap Esophageal Atrasia Consensus statement on the Diagnostics, Preoperative, Operative, Postoperative Management, Follow-up and Framework. English version German version Consensus statement on the Perioperative, Surgical and Long-term Management of patients with Long-gap Esophageal Atrasia English version German version Hirschsprung's Disease Guideline Close ERNICA developed a guideline for the management of rectosigmoid Hirschsprung's disease. A version tailored specifically for patients and their families is currently in development.

< Back Universitätsklinikum Frankfurt Germany This centre has expertise for ERNICA in: Duodenal And Small Bowel Atresia Gastroschisis Necrotizing Enterocolitis Omphalocele Previous Next

< Back Azienda Ospedaliera Nazionale SS. Italy This centre has expertise for ERNICA in: Morbus Hirschsprung Previous Next

Joining ERNICA How to Become a Member of ERNICA You can only submit an application in response to a call by the European Commission for Reference Centers to join existing ERNs. The previous call closed on 30 November 2019: https://ec.europa.eu/health/ern/consultations/2019_call_membership_en A new call is not yet foreseen. For more information on how to apply in case of a new call, see the instructions of the previous call: https://health.ec.europa.eu/consultations/2019-call-membership-existing-european-reference-networks-erns_en#how-to-apply-to-become-a-member-of-an-ern .

< Back University Hospital Centre Zagreb Affiliated partner ERNICA Previous Next

NEC U.K. is the first charity in the UK exclusively for the condition Necrotising Enterocolitis (NEC).It is parent led and primarily offers support to families affected by the condition at any stage of their journey. < Back NEC UK NEC U.K. is the first charity in the UK exclusively for the condition Necrotising Enterocolitis (NEC).It is parent led and primarily offers support to families affected by the condition at any stage of their journey. Previous Next